This summer I’m writing a serial story entitled, “The Man with the Hole in His Brain”. This is Chapter 1.

The Man with the Hole in His Brain

And he judged of others by himself, not believing in what he saw, and always believing that every man had his real, most interesting life under the cover of secrecy and under the cover of night.– Anton Checkov

Chapter 1

A man is standing alone and shirtless in front of his full-length bedroom mirror.

He’s 38 years old and knows, with bone-certainty, he’s lucky to be alive–let alone have a doting wife, three lovable children, a warm and spacious house to live, parents who are still alive and still love him, a job he enjoys, food in the fridge and two cars fat with gas in the driveway.

He knows he’s blessed and that his world is a good place to live.

However…

…of course there’s a however. There has to be a however.

I recently taught a fundamentals of storytelling seminar at a local university. I will not lecture you on said fundamentals but your conviction to this story, and to all stories for that matter, hinges on the gravity of the however. However indicates a change, a conflict, a turn.  And if the however is big enough, desperate enough, it may compel people to do two extraordinary things: listen and feel. 

Tiger Woods was once laser-focused on his golf game however…

Anyway.

The man in this story, like characters in all stories–whether fact or fiction, has a secret.

He has a good life, one others often envy. And he’s a good man too. Loyal and honest. Quick to buy a frustrated friend a beer and listen to his worries.

However, when he’s alone and shirtless in the mirror he trembles with shame.

He’s ashamed his arms lack the thickness and sturdiness of a father’s arms. Ashamed his chest, sunken and poorly muscled, looks like two deflating balloons. Ashamed his shirt, when it’s on, is more like a pillow case hiding the soft and lumpy pillow underneath.

Five years ago doctors discovered a hole in the man’s brain. A hole that, doctors labeled, “potentially fatal.”

The doctors fed the man a daily diet of steroids and pain medications that the man willfully ingested and, in turn, willfully weakened his all his muscles, not just the ones hidden under the pillow. Soft and stretched, his body looks to be owned by a much older man.

The man stares long enough in the mirror to forget about his good life.

If it wasn’t for bad luck, I wouldn’t have any luck at all, he thinks.  He worries, as he often does, about the hole is brain. Will it get bigger? Will it kill me? Or like a hole on the beach, could the hole in his brain be filled sand, the bottom of a soda can, a broken flip-flop heel? Or maybe it could be filled with more scientific things like neurons and dendrites and axons.

He gets mad at himself, which he often does.

He blames himself, which he often does

He curses the hole in his brain, stares into his own eyes and wonders how his good world would look like without him in it.

Little footsteps rush down the hall and the man tosses on his shirt, turns to his dresser, pulls open a drawer and pretends to be looking for something.

“Dad, what are you doing?”

“Just looking.”

“Looking for what?”

The man pushes around some papers in the drawer.

“Something I lost.”

The youngest child, a boy, almost five with short brown hair, freckles doting his nose and who, when he tilts his head and smiles, reminds the man of himself. “My teacher said that when we lose something we care about we should just keep looking for it.”

The man turns back to the mirror. His eyes are deep blue like the child’s.  Below his soft chest,  beats the heart of a child–boundless and wild. A heart that yearns to play outside again. To run, jump, tackle, and swing. To sweat, to bleed, to get dirty again.  A heart that is much younger then the body that holds it.

However, there’s a hole in his brain. A hole that makes the man cautious, off-balance, and afraid.

The child stops in doorway, turns, “Dad, can you go outside and play with me?”

For five years the man has filled the hole in his brain with excuses and fear.

The man thought when he became a father he would be a big kid. Hat spun backwards, t-shirted ringed with sweat, playing in the backyard with his children on a hot Saturday afternoon.

“Not right now.” The man winces at his boy, “When I’m done looking for the thing I lost.”

The boy looks up and appears older then when he crossed into the room, “Dad, keep looking. I know you’ll find it.” The boy leaves and the man thinks about all the big things adults spend their lives trying to hide.

The backdoor opens then closes.

The man moves to the window, looks down, and sees the child, alone, kicking a soccer ball in the backyard.

Catching his reflection in the window’s reflection, the man pledges to his faded self to do something this summer to fill the hole in his brain so he could one day play with his child in the backyard again.


Post Script…

I want to thank everyone for being patient with me. For the past few weeks I’ve been experimenting with some different writing forms, as I continue the laborious process of discovering who I am as a writer.

Today, I consider myself a creative nonfiction writer. Tomorrow, however…

I gravitated toward creative nonfiction because I want to tell you a true story that mixes literary styles while producing both an entertaining and factually accurate story.

If you’ve been reading write on fight on for any stretch of time you’re familiar with my health struggles. In fact, you may even be tired of hearing about them. But, as weird as it sounds, I’m thankful for my health struggles. They’re what inspired me to pursue my lifelong dream of being a writer.  So I find it almost impossible to write about anything else right now.

Since summer is the season for trying new things,  The Man with the Hole in His Brain is a more ambitious, literary complex approach to what I’ve been trying to tell you for years.

I have an autoimmune disorder, sarcoidosis, which atrophied my muscles, weakened joints and vacuumed a hole in my brain.  A hole I often fill with excuses and self-doubt. The hole is where this story begins.

My goal this summer is to figuratively remove the trash festering the hole and fill it with moxie and resolve.

This summer I’m committed to regaining my coordination and balance, my ability to run and jump again. I’m committed to playing soccer again with my children and running a 5k in September.

The Man with the Hole in His Brain is a literary retelling of the successes and failures I endure this summer as I attempt to disbelieve the excuses I made for myself and believed for the past 5 years.

write on fight on’s tag line is “Stories told. Lives changed.” When I first started this blog my vision was to share other people’s stories to help change other people’s lives. And I did, but as altruistic as that was, I failed to recognize that you can’t change other people without learning how to change yourself.

I never realized that my story was the story I was trying to tell. And that it was my life I was trying to change.

Be well,

Jay

Are you self-compassionate?

Last week, while visiting family in suburban Tennessee, I read 13 Things Mentally Strong People Don’t Do by Amy Morin.

Morin’s book, one I would highly recommend, offers practical advice on how to effectively overcome setbacks and to thrive on adversity.

On the last day of our trip, my son Chase developed swimmer’s ear.

With his head in my lap, watching cartoons and moaning when the pain spiked, I rubbed his back, attempted to comfort him while turning over one of Morin’s quotes,

“Self-compassion may be the key to reaching your full potential.”

As a parent there’s an intrinsic desire to fix your children. To take extinguish their pain because when they hurt you hurt.

So why when we, the adults, suffer– why do we isolate ourselves? Why are we shamed by our pain?  Why do we deny help? Why do we mask our pain with pills, with silence, with excuses?

I’ve learned that most adults, though compassionate toward others, are not terribly compassionate toward themselves. Instead we compound our own problems, we victimize ourselves and further deepen our suffering.

When we hurt, do we treat ourselves with same amount of compassion we treat our children? Or are we harder on ourselves? Do we ignore and suppress our pain? Are we our harshest critic?

Compassion, by definition, means to “suffer with”. Self-compassion is the act of rubbing your own back and reminding yourself it will be okay.

By practicing self-compassion, by forgiving yourself for your shortcomings, failures and pain you’re giving yourself permission to endure, to forge ahead, to live a courageous life.

Be well,

Jay