Month: December 2019

A decade of waiting (or a part of me is in a petri dish right now)


A decade of waiting (or a part of me is in a petri dish right now) The other day, I had a small medical procedure done and as I write this sentence a chunk of my body floats in a petri dish waiting for a diagnosis. This impending diagnosis is something new– unrelated to my […]

What my 7 year old son and a friend with a terminal illness said about happiness


What my 7 year old son and a friend with a terminal illness said about happiness I wrote this post in December 2017. A lot has happened since then. My son, Chase, is 9 now, attends a new school, and wears braces. My friend, Deb, has passed away. Yet today, I thought about the lesson […]

I want to tell you two things…


I want to tell you two things… First, The National Ataxia Foundation recently named yours truly the Ataxia Ambassador of Philadelphia. My responsibilities include organizing support group meetings, contacting local ataxia experts, and raising ataxia awareness in the Philadelphia/South New Jersey region. This a great honor. I’m excited and privileged to help raise ataxia awareness […]

A friend visits and teaches me about gratitude


A friend visits and teaches me about gratitude A friend sits at my kitchen table and tells me about their bad stuff. (I don’t mind writing about my bad stuff but I’m not at liberty to write about other people’s bad stuff so I will sacrifice details with generalization.) My friend talks openly about their […]