About

So let’s get the awkwardness out of the way….

I’m Jay Armstrong and I’m a high school English teacher, writer and I’m addicted to storytelling.

The creation of this website has been a strange and winding one. To keep things short I have two rare diseases. In 2013, I was diagnosed with Cerebellar Degeneration, an unpredictable, untreatable condition with no known cure. Then in 2015, tested positive for a  treatable but chronic auto-immune disorder  that causes bodily inflammation known as Sarcoidosis.  By all accounts the two disorders are not related. I’m just lucky.

When I was diagnosed with Cerebellar Degeneration,  the doctors  scratched their heads and suggested I get my affairs in order. I was 33 years old.

Scared out of my skull I thought a lot about not just the prospect of death but dying without ever doing the thing I really loved…writing. The thought of dying with so many untold stories nestled inside me was– well– killing me.

So at some point I decided that if I was going out, I would make sure my stories weren’t going with me.

Then something funny happened… after all the blood tests, CAT scans, MRI’s, DaT Scans, muscle biopsies  and ultrasounds, after all the neurologists, pulmonologists, rheumatologists and physical therapists, after all the  quiet waiting rooms with out- dated magazines, after the online support groups,  after all the nervous hours scouring WebMD.com and  even after  a visit to the nexus of the  medical universe- The National Institute of Health…  I didn’t die.

In fact, after two years of physical and emotional beatings,  I began treatment for the Sarcoidosis, read then watched Silver Linings Playbook  and am unashamed to admit I’m doing well.

Ironically,  it was those beatings that  brought me back to life. Those beatings reinforced things I knew all along… I belong reading good books, attempting to write good stories and teaching others about writing.

Having a rare disease is lonely business. Writing is lonely business. Hell, living is lonely business. I want you to know that you are not alone. I want you to know that your story doesn’t just exist…your story matters. And I hope this site gives you the courage to tell your story, to preserve your story.

I want to offer you my stories , my perspective on writing and life and  a place to embrace the power of the human story.

familySo Jay,  do I need to have endured or be enduring some medical tribulation in order to enjoy this site?

God I hope not.

If you’re a student struggling through “school writing”, an aspiring author, a lover of literature,  lost in life’s wilderness or just looking for a little inspiration  with the prospect of a little humor I hope you will frequent WoFo.

Besides just offering advice and perspective,  WoFo  wants to demonstrate the power of the human narrative. To do this, WoFo also serves as a community outreach program that facilitates Write-a-Thons (think walk- a- thons, without the neon headbands). The purpose of the Write -a-thon is to bring people together, afford those people time  create original art while raising money for charitable causes. Be sure to check the Write- a- Thon page for latest happenings and events.

I have learned that stories have the power to change lives, to save lives.

writeI believe we all have stories inside us just aching to be heard. I hope this site offers you the support, inspiration and courage to tell your story.

Be well,

Jay Armstrong

 

 

 

2 thoughts on “About”

  1. I have sarcoidosis also. Discovered it in the last year or so and hopefully going to start treatment soon. I also have Common Variable Immune Deficiency(OT Primary Immune Disease), Ehlers-Danlos, ect ect and the list goes on. Sarcoidosis affects my lungs, nervous system, lymph nodes, heart ect. I have a few questions. I’m new to this one lol. I’m in pain all the time with my muscles and bones and am on medication for pain. Am I the only one that has to take medicine for pain? Does the fatigue improve once I start treatment and get the inflammation down? I have 60 pounds of fluid/water weight on me from cardiac sarcoidosis and my cardiologist is hoping treatment will allow my body to let go of it. Any ways I enjoy your site and I understand how you feel. I have to find the silver lining out of all moments in life so I don’t let this disease take my spirit.

    1. Ashley,
      I appreciate your comment. Sorry to hear about your diagnosis. The months following my diagnosis were some of the hardest of my life. Doubt. Confusion. Fear. Sadness. I felt it all.I had joint and back pain for about 3 years, until I changed my diet. I ate vegan for 1 year and in that time my pain stopped and I was able to ween myself all medication. I’m not a doctor but I recommend eating a clean, natural diet to help with pain and inflammation. Thanks for reading! Yes, find the silver linings…they are there shining behind the clouds.
      Be well,
      Jay

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