Category: Health

The Backwards Brain Bicycle


The other day my friend Pete shared with me the video, The Backwards Brain Bicycle. I watched it, at times stunned, saying to myself, “Yes! This is how my brain works.” The video shows what happens when an experienced bicycle rider tries to ride a backwards bicycle. Meaning, when you turn the handle bar to […]

Let’s take it one step at a time this week


A good friend is doing something big this week. To honor their privacy I can’t reveal the specifics but my friend is taking a long-awaited, positive risk. A risk they have thought about and talked about for a long, long time. My good friend is nervous. And rightly so. They’re a little older now. A […]

Health Update: 8 Weeks of VRT


~This is a new post~ Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my […]

How to Cross a Threshold


The following post, “How to Cross a Threshold” was originally published on March 18, 2018. This piece was also published in “Generations”, a quarterly publication that explores ataxia research and promotes ataxia awareness.     If you are distressed by anything external, the pain is not due to the thing itself, but to your estimate of […]

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

We Weren’t Meant to Wallow


 ~To a friend who is having a bad day.  Today was bad. Something made you angry or frustrated or upset.  Something made you feel lost or confused or worried. Today, something got the best of you. And when it did– maybe you tightened your jaw. Maybe you balled your fist and seethed. Maybe you slammed […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Happy Holidays from Write on Fight on!


Happy Holidays from Write on Fight on! I woke up on Christmas Eve morning at 10 am, which is absurdly late for me. Even on weekends I’m out of bed by 7 am. The reason? My children are getting an XBox for Christmas and I was up until 2:30 am installing updates, setting up parental […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

Going back to Bethesda


I started writing this post in a hotel room in Gaithersburg, Maryland. I’m thinking about the last time I was in Maryland–three years ago. How I had so much too say. So much too write. And how sometimes going back to a place that haunts you is the only way to find peace. Today I […]