Tag: health

The scary step forward


The scary step forward This is for F. Lately I’ve been really interested in American Westward expansion of the mid-19th century. Partly because I just watched The Revenant again and partly because I just finished reading a fantastic novel, The Indifferent Stars Above by Daniel James Brown, which chronicles the harrowing western journey of several […]

Leave it to the dead to teach us about living


Leave it to the dead to teach us about living This post is dedicated to JR and LM. Keep fighting kids. It’s worth it. Yesterday, before I received Deb Dauer’s inspirational blog-turned-book, Not Gonna Be a Debbie Downer I highlighted the following sentence in Roman Emperor Marcus Aurelius’s journal, Meditations: “The whole of present time […]

The Backwards Brain Bicycle


The other day my friend Pete shared with me the video, The Backwards Brain Bicycle. I watched it, at times stunned, saying to myself, “Yes! This is how my brain works.” The video shows what happens when an experienced bicycle rider tries to ride a backwards bicycle. Meaning, when you turn the handle bar to […]

Where are we going? (And what’s the hurry?)


~This is a new post~ It’s 7:15 am and I’m driving to work and the silver SUV behind me is riding my tail. In the rear view mirror, I see a women with bright red lipstick in the driver’s seat motioning for me to move out of her way. I can’t hear her but she’s […]

I’m thinking of you, Alex Trebek


~This is a new post~ Friday evening I watched a full episode of Jeorpardy!. I’ve always enjoyed the show (even unsuccessfully attempted an online tryout) but the show airs weekdays at 7 pm, a time I’m usually carting the kids of to some practice or game. My reason for tuning in was part curiosity, part […]

Let’s take it one step at a time this week


A good friend is doing something big this week. To honor their privacy I can’t reveal the specifics but my friend is taking a long-awaited, positive risk. A risk they have thought about and talked about for a long, long time. My good friend is nervous. And rightly so. They’re a little older now. A […]

Health Update: 8 Weeks of VRT


Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my brain really be fixed? To […]

To celebrate 100 subscribers…


To celebrate 100 subscribers I’m gifting “Don’t Sweat the Small Stuff” and a “Life favors the brave” bookmark to Megan C.– Write on Fight on’s 100th subscriber. I want to thank everyone who has shared this journey with me. I know your life is full. It’s demanding, packed with commitments, and ripe with responsibilities. And […]

How to Cross a Threshold


The following post, “How to Cross a Threshold” was originally published on March 18, 2018. This piece was also published in “Generations”, a quarterly publication that explores ataxia research and promotes ataxia awareness.     If you are distressed by anything external, the pain is not due to the thing itself, but to your estimate of […]

Taking Notes: A Love Story


In the spirit of Valentine’s Day–the following story “Taking Notes: A Love Story” was originally published on February 16, 2018 In a world with Nicholas Sparks it’s hard to write something original about love. Love is a well-traveled topic. One, I’m sure, you’ve taken plenty of notes on. Love is patient. Love is kind. Love is engraved […]