Tag: health

Health Update: 8 Weeks of VRT


Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my brain really be fixed? To […]

To celebrate 100 subscribers…


To celebrate 100 subscribers I’m gifting “Don’t Sweat the Small Stuff” and a “Life favors the brave” bookmark to Megan C.– Write on Fight on’s 100th subscriber. I want to thank everyone who has shared this journey with me. I know your life is full. It’s demanding, packed with commitments, and ripe with responsibilities. And […]

How to Cross a Threshold


The following post, “How to Cross a Threshold” was originally published on March 18, 2018. This piece was also published in “Generations”, a quarterly publication that explores ataxia research and promotes ataxia awareness.     If you are distressed by anything external, the pain is not due to the thing itself, but to your estimate of […]

Taking Notes: A Love Story


In the spirit of Valentine’s Day–the following story “Taking Notes: A Love Story” was originally published on February 16, 2018 In a world with Nicholas Sparks it’s hard to write something original about love. Love is a well-traveled topic. One, I’m sure, you’ve taken plenty of notes on. Love is patient. Love is kind. Love is engraved […]

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

Making a Change


~ To my friend, who had the courage to make a change  Her change caught everyone by surprise. They thought things were fine. She seemed so happy, so go-lucky. “I’m so surprised,” they said. What they couldn’t see was that deep inside her heart stewed a restlessness that, on certain days, breached the kettle lip […]

Life Favors the Brave


A student writes a fantastic piece of how their grandfather use to take them fishing on summer mornings. How standing on the bank, listening to the lake lap against the shore, under the morning sun they found peace. A peace they could not find anywhere else. Then winter turns and their grandfather dies. They write […]

We Weren’t Meant to Wallow


 ~To a friend who is having a bad day.  Today was bad. Something made you angry or frustrated or upset.  Something made you feel lost or confused or worried. Today, something got the best of you. And when it did– maybe you tightened your jaw. Maybe you balled your fist and seethed. Maybe you slammed […]

Happy Birthday Mom


Today is my mom’s birthday. And because it falls on the edge of the holiday season, her birthday is often less of a spectacle, hastily remembered, and often underappreciated. Which, in a way I guess, makes sense. As a child, like most children, I took mom for granted. I just assumed she would always be […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]