Tag: health

Psst…spread the word


Pretty Cool… My research and stories were recently highlighted in “Conquer”, a newsletter which provides news and support for people living with Myasthenia gravis. MG is an autoimmune disorder in which communication between the nerve and muscle is impaired, causing severe muscle weakness. Really Cool… Through the my post on the writeonfighton Facebook page, a […]

To a friend who is concerned about spending their time wisely


To a friend who is concerned about spending their time wisely  Years ago, when I was doing stand-up comedy, I fell into a conversation with an older women, a grandmother type. She was sitting at the bar where I had just finished a set. After a sip of her 7 and 7, she told me […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

Going back to Bethesda


I started writing this post in a hotel room in Gaithersburg, Maryland. I’m thinking about the last time I was in Maryland–three years ago. How I had so much too say. So much too write. And how sometimes going back to a place that haunts you is the only way to find peace. Today I […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

26 things I tell myself when I’m struggling


            To my friend, who thinks no one understands…we understand. “This too shall pass.” (King Solomon) “There bad moments. But there are no bad days.” “Beyond this mountain is another mountain.” (Haitian Proverb) “Sometimes it’s okay to be selfish.” “Somewhere, someone has endured much worse.” “Look hard enough until you […]

Having a hole in your brain isn’t all terrible. Learning to make the best of your misfortunes


Having a hole in your brain isn’t all terrible. Dare I say I’m grateful for having the opportunity to endured such a misfortune. For I’ve learned my attitude about such stark truth is simply a matter of perspective. Like this one time when I was having a PET scan– which tests for Multiple Sclersosis. I […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]

The race I did not run.


On June 2nd I marked September 23rd on my calendar. On September 23rd I planned to run my first 5k. An act of defiance of sorts. Defying both body and brain. Proving that I could physically and mentally triumph over 5 years of living with cerebellar ataxia, sarcoidosis, nystagmas, enlarged lymph nodes, vertigo, muscle spasms, […]

Health Update: It's a migraine but it's complicated


On Monday a neurologist diagnosed me with a lingering migraine. Dizziness, nausea, stabbing headaches, sensitivity to light are symptoms aligned with a migraine. This is the first time I have been diagnosed with a migraine. The neurologist ordered some blood work and issued prescriptions for a brain MRI to see if the cerebellum has further […]