Tag: chronic illness

A book update, a health update… and apparently I'm looking good these days


A book update, a health update…and apparently I’m looking good these days I’m extremely lucky to have an amazing network of people who are supporting my book effort. Since Monday I’ve received emails and messages of support. People have gifted me books, suggested books, recommended people to interview, and someone even offered to edit my […]

The scary step forward


The scary step forward This is for F. Lately I’ve been really interested in American Westward expansion of the mid-19th century. Partly because I just watched The Revenant again and partly because I just finished reading a fantastic novel, The Indifferent Stars Above by Daniel James Brown, which chronicles the harrowing western journey of several […]

The Backwards Brain Bicycle


The other day my friend Pete shared with me the video, The Backwards Brain Bicycle. I watched it, at times stunned, saying to myself, “Yes! This is how my brain works.” The video shows what happens when an experienced bicycle rider tries to ride a backwards bicycle. Meaning, when you turn the handle bar to […]

I want a plastic soul


When I learned about my brain damage I called to tell my friend, a biomedical engineer, studying in Switzerland at the time. I remember telling me the good news– the human brain is plastic. “Plastic? What do you mean?” “The brain is malleable. It changes. So if damage occurs, the brain can adapt and change. […]

I turn 39 this week and I’m out here counting breadcrumbs


I turn 39 on Saturday. A year ago, I wrote I turn 38 this week and I’m still lost.Ā  I’m another year older, 12 months away from 40 and I’m still proud to admit I’m lost. Maybe not as lost as I was last year yet I’m still mildly lost. The GPS is now on […]

Trying to answer the unanswerable questions


~This is a new post~ Five and a half years later and there are still a few pieces missing in my health puzzle. My doctors and I have checked under the table. Lifted the carpet. Felt between the couch cushions. And still nothing. I spent so much time, and energy, in the spring of my […]

Where are we going? (And what’s the hurry?)


~This is a new post~ It’s 7:15 am and I’m driving to work and the silver SUV behind me is riding my tail. In the rear view mirror, I see a women with bright red lipstick in the driver’s seat motioning for me to move out of her way. I can’t hear her but she’s […]

I’m thinking of you, Alex Trebek


~This is a new post~ Friday evening I watched a full episode of Jeorpardy!. I’ve always enjoyed the show (even unsuccessfully attempted an online tryout) but the show airs weekdays at 7 pm, a time I’m usually carting the kids of to some practice or game. My reason for tuning in was part curiosity, part […]

Let’s take it one step at a time this week


A good friend is doing something big this week. To honor their privacy I can’t reveal the specifics but my friend is taking a long-awaited, positive risk. A risk they have thought about and talked about for a long, long time. My good friend is nervous. And rightly so. They’re a little older now. A […]

Health Update: 8 Weeks of VRT


Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my brain really be fixed? To […]