Tag: chronic illness

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

We Weren’t Meant to Wallow


 ~To a friend who is having a bad day.  Today was bad. Something made you angry or frustrated or upset.  Something made you feel lost or confused or worried. Today, something got the best of you. And when it did– maybe you tightened your jaw. Maybe you balled your fist and seethed. Maybe you slammed […]

Happy Birthday Mom


Today is my mom’s birthday. And because it falls on the edge of the holiday season, her birthday is often less of a spectacle, hastily remembered, and often underappreciated. Which, in a way I guess, makes sense. As a child, like most children, I took mom for granted. I just assumed she would always be […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Happy Holidays from Write on Fight on!


Happy Holidays from Write on Fight on! I woke up on Christmas Eve morning at 10 am, which is absurdly late for me. Even on weekends I’m out of bed by 7 am. The reason? My children are getting an XBox for Christmas and I was up until 2:30 am installing updates, setting up parental […]

Psst…spread the word


Pretty Cool… My research and stories were recently highlighted in “Conquer”, a newsletter which provides news and support for people living with Myasthenia gravis. MG is an autoimmune disorder in which communication between the nerve and muscle is impaired, causing severe muscle weakness. Really Cool… Through the my post on the writeonfighton Facebook page, a […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

Going back to Bethesda


I started writing this post in a hotel room in Gaithersburg, Maryland. I’m thinking about the last time I was in Maryland–three years ago. How I had so much too say. So much too write. And how sometimes going back to a place that haunts you is the only way to find peace. Today I […]

How serious am I about this writing stuff?


How serious am I about this writing stuff? When I got sick 5 years ago, and the prospect of death was suddenly real, I became obsessed with discovering my story. Who was I? What did I want to accomplish in life?  Can I find meaning in my suffering? Does my illness ostracize me or does […]