Tag: running

Let’s take it one step at a time this week


A good friend is doing something big this week. To honor their privacy I can’t reveal the specifics but my friend is taking a long-awaited, positive risk. A risk they have thought about and talked about for a long, long time. My good friend is nervous. And rightly so. They’re a little older now. A […]

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

The race I did not run.


On June 2nd I marked September 23rd on my calendar. On September 23rd I planned to run my first 5k. An act of defiance of sorts. Defying both body and brain. Proving that I could physically and mentally triumph over 5 years of living with cerebellar ataxia, sarcoidosis, nystagmas, enlarged lymph nodes, vertigo, muscle spasms, […]

The small moments have been the hardest The vertigo has been in my brain for 5 weeks


I’m lying on my back on the floor, staring at the ceiling, and I’m afraid to move. The vertigo has been in my brain for 5 weeks. And though symptoms have subsided enough for me to function, I still feel like I’m falling off a cliff every time I sit up or roll to my […]

Vertigo: A Month Later Learning from defeat


On August 9th the living room would not stop spinning. Lying down, sitting or standing it doesn’t matter. It was as if I’m strapped in a Tilt-a-Whirl. Closing my eyes helps a little. The spinning gets to my stomach but I’m hungry but I don’t want to eat. I feel like throwing up. I double […]

Goals and Old Friends Two things that I hope never go away


It’s comforting/humbling/nice and even a little weird to know that people enjoy reading my life. And that after they hadn’t read a new post in a week, some people even contacted me and asked, “Are you okay?” As a modern man I’ve been groomed to puff out my chest, stare with a set of steely […]

Training Session #52- August 10: The Danger of “I wish…” Simply revising your vocabulary can lead to significant change


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating in a 5k […]

Training Session #51- August 7: Be careful, the children are watching An unexpected lesson from choosing a health lifestyle


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my confidence and my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating […]