Tag: reflection

The Backwards Brain Bicycle


The other day my friend Pete shared with me the video, The Backwards Brain Bicycle. I watched it, at times stunned, saying to myself, “Yes! This is how my brain works.” The video shows what happens when an experienced bicycle rider tries to ride a backwards bicycle. Meaning, when you turn the handle bar to […]

Dealing with doubt


This week I taught John Patrick Shanley’s 2008 play “Doubt”. If you’re not familiar, Netflix is currently streaming the film adaptation staring Philip Seymour Hoffman, Amy Adams, and Meryl Streep. It’s a fast, suspenseful masterpiece that will leave you, well–doubting. No surprise, with all the Doubt in my life this week–I found it difficult to […]

Trying to answer the unanswerable questions


~This is a new post~ Five and a half years later and there are still a few pieces missing in my health puzzle. My doctors and I have checked under the table. Lifted the carpet. Felt between the couch cushions. And still nothing. I spent so much time, and energy, in the spring of my […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Happy Holidays from Write on Fight on!


Happy Holidays from Write on Fight on! I woke up on Christmas Eve morning at 10 am, which is absurdly late for me. Even on weekends I’m out of bed by 7 am. The reason? My children are getting an XBox for Christmas and I was up until 2:30 am installing updates, setting up parental […]

This post is dedicated to the look my son gave


These days Santa Claus is a curious subject in our house. I’m pretty sure my 10 year old daughter doesn’t believe. However her belief, or lack there of, has yet to be confirmed. My 8 year old son’s belief hangs limbo. He’s asking questions: “So what if your house doesn’t have a chimney?” and “So what […]

My daughter becomes a writer


Last night I sat beside my daughter at the kitchen table has she did homework. Haley had to write an original story using her spelling words. She worked the pencil and finessed the spelling words into this cute little story about being a teenager ticket-taker at a roller coaster on the New Jersey boardwalk. She’s […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

It was both funny and painful to watch "Everything hurts."


Three days after the race and Cindy is walking as if she has a pair of wooden legs. “Everything hurts. My legs, my back, my ribs.” I stand at the kitchen sink and watch Cindy open the cabinet, reach for a glass, and wince. She draws a breath. “I should’ve trained for the race.” She […]

Health Update: It's a migraine but it's complicated


On Monday a neurologist diagnosed me with a lingering migraine. Dizziness, nausea, stabbing headaches, sensitivity to light are symptoms aligned with a migraine. This is the first time I have been diagnosed with a migraine. The neurologist ordered some blood work and issued prescriptions for a brain MRI to see if the cerebellum has further […]