Tag: writeonfighton

Psst…spread the word


Pretty Cool… My research and stories were recently highlighted in “Conquer”, a newsletter which provides news and support for people living with Myasthenia gravis. MG is an autoimmune disorder in which communication between the nerve and muscle is impaired, causing severe muscle weakness. Really Cool… Through the my post on the writeonfighton Facebook page, a […]

To a friend who is concerned about spending their time wisely


To a friend who is concerned about spending their time wisely  Years ago, when I was doing stand-up comedy, I fell into a conversation with an older women, a grandmother type. She was sitting at the bar where I had just finished a set. After a sip of her 7 and 7, she told me […]

What my 7 year old son and a friend with a terminal illness said about happiness


I wrote this post one year ago. It remains one of my favorites. And one that, in the feverish throes of holiday shopping and gift giving, stands as an important reminder. My son Chase is now 8. He has less teeth then he did last year and wants an Xbox for Christmas this year. My […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

My daughter becomes a writer


Last night I sat beside my daughter at the kitchen table has she did homework. Haley had to write an original story using her spelling words. She worked the pencil and finessed the spelling words into this cute little story about being a teenager ticket-taker at a roller coaster on the New Jersey boardwalk. She’s […]

I’m watching It’s a Wonderful Life with my son…


I’m watching It’s a Wonderful Life with my son, Chase, when in between handfuls of popcorn he asks two questions: Why did people back then only see in black and white? Why did George want to jump off the bridge? Question one was easy to answer but difficult for my 8 year my son to understand. […]

Happy Thanksgiving


When I look at the world and its hulking mountains, its sandy beaches, its flowered fields, its distant stars–I realize the world has enough stuff. When I look at myself and my loving and supportive family, my messy but comfortable home, my refrigerator full of food, my shelf full of books– I realize I have […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

“So that’s what nipples are for!” A story about my 8 year old son


My niece Madison Katherine was born on Tuesday, September 18th. As Maddy stirred in her clear hospital-issued bin, my sister-in-law nodded, smiled, and politely announced it was feeding time. When I ushered my three kids out in the white-hospital hall Chase looked up at me with a pair of blue-honest eyes and asked, “Dad, how […]

Happy Diagnosis-versary! Why I celebrate my worst day


For the second year in a row I’m celebrating my worst day– September 4, 2013 with a homemade chocolate cake topped with vanilla icing and one of Springsteen’s most badass lines “Ain’t no sin to be glad you’re alive.” In fact, I made the same cake last year however, I’d like to believe this year’s […]