Tag: vulnerability

Oranges (or raising a 10 year old)


~This is a new post~ An older woman with black-rimmed eyeglass and a red fedora is peeling an orange. Her unpainted and clipped finger nails strip away the dimpled skin. She didn’t know, or pretended not to care, that I was watching her peel and place both the skin and pith in a paper towel […]

How I spent my snow day (or trying to make a connection)


~This is a new post~ I totally nerded-out on my snow day. I spent the day writing a letter to Tim O’Brien– author of my favorite book, The Things They Carried. After some internet recon (sounds more upstanding than stalking) I found that Tim O’Brien currently teaches creative writing at Texas State University. In 2010, […]

How to Cross a Threshold


The following post, “How to Cross a Threshold” was originally published on March 18, 2018. This piece was also published in “Generations”, a quarterly publication that explores ataxia research and promotes ataxia awareness.     If you are distressed by anything external, the pain is not due to the thing itself, but to your estimate of […]

It’s been a tough week ~Taking My Own Advice~


It’s been a tough week. You know–one of those weeks where multiple things break, plans halt and change, arguments ensue, and the shit rises and officially hits the fan. It’s been a week of little frustrations, piling on each other, making one, hot snarling big frustration that stands bow-legged, arms-crossed, and grins six inches from […]

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

Making a Change


~ To my friend, who had the courage to make a change  Her change caught everyone by surprise. They thought things were fine. She seemed so happy, so go-lucky. “I’m so surprised,” they said. What they couldn’t see was that deep inside her heart stewed a restlessness that, on certain days, breached the kettle lip […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Our children need gardeners not gods.


As parents, it’s our fundamental responsibility to recognize that our young children see us as gods. This declaration unnerves me. My three children are under under 10.  In their eyes I’m a flawless, precise, all-powerful, all-knowing god.  I am the law. The 10 commandments of suburbia.  My words are gospel. And when I shake my […]

This post is dedicated to the look my son gave


These days Santa Claus is a curious subject in our house. I’m pretty sure my 10 year old daughter doesn’t believe. However her belief, or lack there of, has yet to be confirmed. My 8 year old son’s belief hangs limbo. He’s asking questions: “So what if your house doesn’t have a chimney?” and “So what […]