Tag: sarcoidosis

Training Session #35- July 13: The Thing about Voice in Your Head


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating in a 5k […]

Training Session #34- July 12: How to Deal With Anything


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating in a 5k […]

Accepting Uncertainty: The Most Important Question A Chronic Illness Patient Can Ask


The following post is part of the The January Project: Chronic Illness. A month long project where I research and write about chronic illness.  The information presented in this project is intended for educational purposes only. I am not a doctor. I am a teacher and writer who, while being afflicted with two chronic illnesses, is trying […]

How I Finally Kicked Prednisone’s Ass


After a three year fight with the infamous steroid Prednisone — I’m proudly standing in the middle of the ring and raising my arms in victory. In July of 2014 my rheumatologist prescribed a moderately high daily dosage of 35 milligrams of Prednisone to relieve my chronic inflammation and joint pain caused by the autoimmune disorder — sarcoidosis. The […]

Why I Celebrated My Worst Day


When I decided to celebrate my worst day I had romantic dreams of baking a chocolate cake, coating it with vanilla icing and beautifully decorating it with some unabashed inspirational quote. Here’s what happened. It’s okay to laugh. Seriously. I know, it’s high fructose, high caloric train wreck. Just in case you can’t read it, […]

How Sarcoidosis Inspires Me to Be Creative Everyday


This article originally appeared on themighty.com. After I was diagnosed with sarcoidosis I spent weeks circling the drain of self-pity. I was convinced my problems were worse then anyone else’s. I blamed myself. I cursed God. When my wife tried to talk to me I was tight-lipped and curt. I was angry and afraid and […]

20 Things My Chronic Illness has Taught Me


  A few days after a muscle biopsy procedure my doctor called and delivered the name of my mysterious internal antagonist–Sar-coy-something. As I scratched down its letters on the back of a Chinese take-out menu he explained the intimacies of my disease, offered some reassurance and outlined a plan of attack. When the call ended […]