Tag: sarcoidosis

What good advice do you fail to take?


The other day I asked my students, “What good advice do you fail to take?” The answers ranged from “don’t procrastinate” to “live in the moment” to “eat vegetables” to “don’t sweat the small stuff” to “get more sleep.” My students, high school seniors, are primed for advice. Fresh-faced, wide-eyed, eager, energetic, and ready to […]

How to Overcome Anything


How to Overcome Anything For the past two weeks I received messages about how either you or a loved one is struggling. Heavy stuff: Depression. Addiction. Anxiety. Chronic illness. Suicidal thoughts. You have reached out and said that this blog has comforted you or helped you. Honestly…I don’t know what to say. I mean, if […]

Trying to answer the unanswerable questions


~This is a new post~ Five and a half years later and there are still a few pieces missing in my health puzzle. My doctors and I have checked under the table. Lifted the carpet. Felt between the couch cushions. And still nothing. I spent so much time, and energy, in the spring of my […]

Health Update: 8 Weeks of VRT


Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my brain really be fixed? To […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

I’m hungover.


I’m hungover. Except I haven’t had a drink almost 3 months. My head is pounding and I’m dizzy and nauseous as if it was 1999 and last night I chased a bottle of strawberry Boone’s Farm with 10 Natty Lights. I stagger to the shower. Shower. Towel off. Get changed. Get coffee, started feeling sorry […]

The morning after a neurologist found my brain damage I went to work. The story of the blue collar patient


Cindy told me to stay home. Put my feet up. Watch daytime television. Rest. But I insisted on going to work. “I have too much work to do.” I was teaching Cormac McCarthy’s novel The Road. Set in a post-apocalyptic world, the novel chronicles a father-son relationship and argues a father’s chief duty, no matter […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]