Tag: sarcoidosis

Trying to answer the unanswerable questions


~This is a new post~ Five and a half years later and there are still a few pieces missing in my health puzzle. My doctors and I have checked under the table. Lifted the carpet. Felt between the couch cushions. And still nothing. I spent so much time, and energy, in the spring of my […]

Health Update: 8 Weeks of VRT


~This is a new post~ Thursday February 28th, concluded my 8th week of Vestibular Rehabilitation Therapy (VRT). It was also Rare Disease Awareness Day— a day to raise awareness for rare diseases all over the world. 8 weeks ago, I skeptically began VRT attempting to improve balance, coordination, and overall movement. Without surgery, could my […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Health Update#3: I’m still doing okay.


Health Update #3 In every situation, life is asking us a question, and our actions are the answer. Our job is simply to answer well. ~ Ryan Holiday People have been asking how I’m feeling lately. So here we go: I’m doing okay. I get it, “I’m doing okay” is the response I gave you […]

I’m hungover.


I’m hungover. Except I haven’t had a drink almost 3 months. My head is pounding and I’m dizzy and nauseous as if it was 1999 and last night I chased a bottle of strawberry Boone’s Farm with 10 Natty Lights. I stagger to the shower. Shower. Towel off. Get changed. Get coffee, started feeling sorry […]

The morning after a neurologist found my brain damage I went to work. The story of the blue collar patient


Cindy told me to stay home. Put my feet up. Watch daytime television. Rest. But I insisted on going to work. “I have too much work to do.” I was teaching Cormac McCarthy’s novel The Road. Set in a post-apocalyptic world, the novel chronicles a father-son relationship and argues a father’s chief duty, no matter […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]

The race I did not run.


On June 2nd I marked September 23rd on my calendar. On September 23rd I planned to run my first 5k. An act of defiance of sorts. Defying both body and brain. Proving that I could physically and mentally triumph over 5 years of living with cerebellar ataxia, sarcoidosis, nystagmas, enlarged lymph nodes, vertigo, muscle spasms, […]

Health Update: It's a migraine but it's complicated


On Monday a neurologist diagnosed me with a lingering migraine. Dizziness, nausea, stabbing headaches, sensitivity to light are symptoms aligned with a migraine. This is the first time I have been diagnosed with a migraine. The neurologist ordered some blood work and issued prescriptions for a brain MRI to see if the cerebellum has further […]