Tag: sarcoidosis

I’m hungover.


I’m hungover. Except I haven’t had a drink almost 3 months. My head is pounding and I’m dizzy and nauseous as if it was 1999 and last night I chased a bottle of strawberry Boone’s Farm with 10 Natty Lights. I stagger to the shower. Shower. Towel off. Get changed. Get coffee, started feeling sorry […]

The morning after a neurologist found my brain damage I went to work. The story of the blue collar patient


Cindy told me to stay home. Put my feet up. Watch daytime television. Rest. But I insisted on going to work. “I have too much work to do.” I was teaching Cormac McCarthy’s novel The Road. Set in a post-apocalyptic world, the novel chronicles a father-son relationship and argues a father’s chief duty, no matter […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]

The race I did not run.


On June 2nd I marked September 23rd on my calendar. On September 23rd I planned to run my first 5k. An act of defiance of sorts. Defying both body and brain. Proving that I could physically and mentally triumph over 5 years of living with cerebellar ataxia, sarcoidosis, nystagmas, enlarged lymph nodes, vertigo, muscle spasms, […]

Health Update: It's a migraine but it's complicated


On Monday a neurologist diagnosed me with a lingering migraine. Dizziness, nausea, stabbing headaches, sensitivity to light are symptoms aligned with a migraine. This is the first time I have been diagnosed with a migraine. The neurologist ordered some blood work and issued prescriptions for a brain MRI to see if the cerebellum has further […]

The small moments have been the hardest The vertigo has been in my brain for 5 weeks


I’m lying on my back on the floor, staring at the ceiling, and I’m afraid to move. The vertigo has been in my brain for 5 weeks. And though symptoms have subsided enough for me to function, I still feel like I’m falling off a cliff every time I sit up or roll to my […]

Vertigo: A Month Later Learning from defeat


On August 9th the living room would not stop spinning. Lying down, sitting or standing it doesn’t matter. It was as if I’m strapped in a Tilt-a-Whirl. Closing my eyes helps a little. The spinning gets to my stomach but I’m hungry but I don’t want to eat. I feel like throwing up. I double […]

Happy Diagnosis-versary! Why I celebrate my worst day


For the second year in a row I’m celebrating my worst day– September 4, 2013 with a homemade chocolate cake topped with vanilla icing and one of Springsteen’s most badass lines “Ain’t no sin to be glad you’re alive.” In fact, I made the same cake last year however, I’d like to believe this year’s […]

A Health Update: Our Troubles Are Not Our Own


So my plan of running in a 5k in September has pulled a hamstring. I’m not feeling 90% (because I’ll never feel 100%) but at 90% I feel well enough to train. Currently, I’m feeling 75%. This week I saw a new primary doctor. After compressing five years of medical events into five minutes, I […]

“Dad, why does summer go so fast?” ...and then there was 7 days of summer left


My 10 year old daughter, Haley, looks up from her iPad, sighs, and asks, “Dad, why does summer go so fast?” I laugh and say, ” Sweetie, I’ve been try to figure that out my whole life.” Maybe I’m getting older, but summer seems to pass quicker each year. If you’re like me, you started […]