Tag: mental health

My Best Dreaming Partner


~This is a new post~ Romantic love is a subject I don’t often write about for the simple reason it makes me uncomfortable. I mean, the men I spend time with simply don’t talk about romantic love. And they certainly don’t write about it. But it’s Valentine’s Day and the love of a woman is […]

Taking Notes: A Love Story


In the spirit of Valentine’s Day–the following story “Taking Notes: A Love Story” was originally published on February 16, 2018 In a world with Nicholas Sparks it’s hard to write something original about love. Love is a well-traveled topic. One, I’m sure, you’ve taken plenty of notes on. Love is patient. Love is kind. Love is engraved […]

Why Problems are Special Opportunities


Four weeks into VRT (Vestibular Rehabilitation Therapy) and I’m coming along– one step at a time. My physical therapist and I agreed that I’m at 75%. Meaning another 25% and we both feel I’ll be able to start to run again. In a weird, frustrating, and fascinating way devoting my summer to learning how to […]

A Therapy Story


If you’ve been keeping up this blog you probably know I started Vestibular Rehabilitation Therapy a few weeks ago. VRT is a form of therapy that uses exercise to improve gaze (eye movement) and gait (walking/movement).  My vestibular disorders, which are a result of cerebellar atrophy, vertigo (dizziness) and nystagmus ( involuntary rapid eye movement) […]

Wish me luck…


On Friday, December 28th I begin vestibular rehabilatation therapy again. My first experience with VRT was in the winter of 2014 at the St. Lawrence Rehabilitation Center. The physical goals this time are: to improve balance to improve motor skills strengthen core muscles strengthen legs prepare my body to run again The emotional goals are: […]

Psst…spread the word


Pretty Cool… My research and stories were recently highlighted in “Conquer”, a newsletter which provides news and support for people living with Myasthenia gravis. MG is an autoimmune disorder in which communication between the nerve and muscle is impaired, causing severe muscle weakness. Really Cool… Through the my post on the writeonfighton Facebook page, a […]

How serious am I about this writing stuff?


How serious am I about this writing stuff? When I got sick 5 years ago, and the prospect of death was suddenly real, I became obsessed with discovering my story. Who was I? What did I want to accomplish in life?  Can I find meaning in my suffering? Does my illness ostracize me or does […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]

A Health Update: Our Troubles Are Not Our Own


So my plan of running in a 5k in September has pulled a hamstring. I’m not feeling 90% (because I’ll never feel 100%) but at 90% I feel well enough to train. Currently, I’m feeling 75%. This week I saw a new primary doctor. After compressing five years of medical events into five minutes, I […]