Tag: mental health

Psst…spread the word


Pretty Cool… My research and stories were recently highlighted in “Conquer”, a newsletter which provides news and support for people living with Myasthenia gravis. MG is an autoimmune disorder in which communication between the nerve and muscle is impaired, causing severe muscle weakness. Really Cool… Through the my post on the writeonfighton Facebook page, a […]

How serious am I about this writing stuff?


How serious am I about this writing stuff? When I got sick 5 years ago, and the prospect of death was suddenly real, I became obsessed with discovering my story. Who was I? What did I want to accomplish in life?  Can I find meaning in my suffering? Does my illness ostracize me or does […]

The Danger of Not Telling Your Story


As a writer and a person with a degenerative brain condition, I often tumble into a state of what-will-they-say-about-me paranoia. A state where you hold your breath as you wrestle with the sinking feeling of eternal doom. What has helped me breathe and escape such doom is telling my story. I’ve learned that showing who […]

Thoughts from a Waiting Room


I’m sitting in a waiting room, waiting to get a brain MRI when Jim Croce’s “I’ve Got a Name” begins playing over the ceiling speakers. Like the pine trees lining the winding road I got a name, I got a name Like the singing bird and the croaking toad I got a name, I got […]

A Health Update: Our Troubles Are Not Our Own


So my plan of running in a 5k in September has pulled a hamstring. I’m not feeling 90% (because I’ll never feel 100%) but at 90% I feel well enough to train. Currently, I’m feeling 75%. This week I saw a new primary doctor. After compressing five years of medical events into five minutes, I […]

Why is it so damn hard to take your own advice?


As a teacher, writer, and speaker I give advice. I offer students, readers, and listeners with solutions to the pickles of life. For the past 8 weeks I’ve been training to run a 5k in September. I’ve been telling you that if I overcome my sarcoidosis and brain damage you can certainly overcome your problems. […]

Goals and Old Friends Two things that I hope never go away


It’s comforting/humbling/nice and even a little weird to know that people enjoy reading my life. And that after they hadn’t read a new post in a week, some people even contacted me and asked, “Are you okay?” As a modern man I’ve been groomed to puff out my chest, stare with a set of steely […]

Do you need time to heal? 3 things I learned about healing


Right now I need time to heal. The last three days I have been sick–suffering from dizziness, nausea, and fatigue. I tell you this because I’m 52 training sessions into my quest to get physically fit and I’m frustrated. I want to train but, I know, right now rest trumps activity. But such is life, […]

Training Session #52- August 10: The Danger of “I wish…” Simply revising your vocabulary can lead to significant change


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating in a 5k […]

Training Session #51- August 7: Be careful, the children are watching An unexpected lesson from choosing a health lifestyle


In 2013 I was diagnosed with sarcoidosis, an autoimmune disorder that chewed a hole in my cerebellum, atrophied various muscles, impaired my vision, balance, coordination and consequently stole my confidence and my ability to run. I have dedicated the summer of 2018 to regaining my strength, coordination, balance, and relearning how to run. I am participating […]